Title:

These are the rules by which the group has to abide. All new members should read these, as they govern your membership.

Written by Raoul Hennekam and taken from "Management of Genetic Syndromes", by Allanson J, and Cassidy S; 3rd Edition, 2010

Article from American Journal of Medical Genetics written in 2003 by Susan Wiley, Susan Swayne, Jack H. Rubinstein, Nancy E. Lanphear, and Cathy A. Stevens

Children and adults with Rubinstein-Taybi Syndrome have specific medical conditions that occur with greater frequency than the general population. This is a first attempt at medical guidelines for individuals with RTS, specifically in the United States, but will also be of use to those in other countries. Ongoing research is needed in many areas to guide decisions in medical care and allow for refinement of these medical guidelines.
Aimed at medical professionals, but parents may also find it useful.

To put on the noticeboard at work/college/uni or similar, to publicise your fund-raising event and Just Giving page.

Tell us about your holiday, your RTS person's achievements, your experience of parenting an RTS person, or any information you've found personally useful and think others might benefit from too. And don't forget to send a photo in too !

The Support Group have put together some guidance to help those claiming DLA. Useful for all, but particularly those claiming for the first time.

Member families can apply to this fund for a contribution towards the cost of travelling to one of the Group's events (e.g. a get-together, AGM, etc) which they would otherwise be unable to attend.

Claims will also be considered for subsistence appertaining to an RTS child, for example, unexpected travelling expenses in conjunction with medical appointments or treatments.

To apply, first download and read the full Terms and Conditions also available from this site, then complete the form, and post it to the address shown at the bottom of it.

Please read the Terms and Conditions before applying to the Friends of RTS Fund.

Published by the Support Group itself and full of information and photos.