Rubinstein-Taybi Syndrome UK Support Group

  

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Welcome to all our visitors!

This is the web site of the Rubinstein-Taybi Syndrome Support Group, a UK-registered charity, established to help and support
people whose lives are affected by Rubinstein-Taybi Syndrome (RTS).



Donate JustGiving

If you are planning to raise funds for us, please read our fund-raising information.

WHAT'S NEW

10 to 16 June is Carers' Week - look for events near you.


Learning Disability Week is a week of national campaigning and awareness raising run by Mencap taking place from 19 to 25 August.


Hope all who came enjoyed our latest get-together at Daventry Court Hotel on 18th May. It was very well attended and there was plenty going on...


Fundraising news. Oh no! Sam's bike ride from London to Paris has had to be postponed once more...


We have been very fortunate to have had a number of people raising funds for the group recently and we'd like to say a huge "Thank you" to them all: we do appreciate the hard physical work they've all put in. Still to come: Mark Wilkinson will be running the Torbay Marathon later on in June and has already raised over £1000.
There's still time to donate to your favourite with Just Giving. Donating in this way allows the charity to receive all the money as it is donated so we don't have to wait until the event is over.

The family of a lady in New Zealand who has RTS has published a book about her.


Did you know that by using the easyfundraising website and the easysearch search engine , you can raise funds for us, at no extra cost to yourself, when you shop on-line or make a search ?


easyfundraising.org.uk


easysearch.org.uk

To keep up with all the other news, check out the articles below....

 New Support Forum

 Newsletters

Click HERE to view our new Support Forum

Click HERE to view our past & present newsletters

  Latest News & Events

Below is a list of all the latest News and Events on the RTSUK.org website. To read further about a particlular article please click the headline

 BOOK ABOUT LEANNE, WHO HAS RTS

"Loving L...

 UPDATE ON SAM'S BIKE RIDE

Originally planned for Easter and then postponed till the half-term holidays, Sam's bike ride has un...

 INTRODUCING RUBINSTEIN-TAYBI SYNDROME - FILM

An introduction to the syndrome on YouTube....

 SPRING 2013 GET-TOGETHER

Instead of moving to a different part of the country, we returned this May to the Daventry Court Hot...

 SAM, 13, CYCLING INTO RECORD BOOKS FOR SUPPORT GROUP

Samuel Smith, who is a pupil at Wellington School, will try and enter the record books by becoming t...

 HOLLIE IS HOT STUFF WITH OLYMPIC TORCH

Hollie Baxter, who is 17 and has RTS, carried the Olympic Torch through Luton on Monday 9th July 201...

 SERVICES FOR ADULTS WITH CHALLENGING BEHAVIOUR

The Challenging Behaviour Foundation has published a new information sheet for family carers to help...

 3RD INTERNATIONAL RTS CONFERENCE, NETHERLANDS, 2011

- A personal perspective
It's a long, long way by coach to Noordwijkerhout, but for me, the confe...

 DONATIONS AND FUNDRAISING

Our regular activities, such as get-togethers and publishing the Newsletter, could not take place wi...

 USE EASYFUNDRAISING AND EASYSEARCH AND RAISE MONEY FOR US

DO YOU SHOP ON-LINE ? IF SO, YOU CAN HELP US RAISE FUNDS.
If you haven't yet come across ...

 BEHAVIOURAL RESEARCH UPDATE

The Support Group are liaising with Professor Chris Oliver and his team from the School of Psycholog...

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