Rubinstein Taybi Syndrome UK Support Group

  

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Welcome to all our members and visitors !

This is the web site of the Rubinstein-Taybi Syndrome UK Support Group, a registered charity established to help and support people whose lives are affected by Rubinstein-Taybi Syndrome (RTS).


TO USE THE SITE
Navigate round the site using the links on the left, or the quick links top right.

WHAT'S NEW ?
Well, our Christmas get-together will be coming up very soon, on 6 December, so if you're planning to come but haven't told us yet, give Mags a bell double-quick ! Talking of Christmas, our popular Christmas cards are again available this year. Click here to view design one and design two. Each pack contains both designs and ordering is easy - just download an order form, and post it to us with the correct payment.

We're very pleased to be able to tell you that the date and venue of our next family weekend have now been finalised. You can find all the details, including the planned itinerary, in our News section.

And now that the RTS clinic at Great Ormond Street Hospital is up and running, we'd be interested in any feedback (good or bad) from any of our members who've used the facility - for instance, did your visit help you ? Please let us have your feedback via the form on the Contact Us page.

Don't forget, while you're doing your on-line Christmas shopping you can be raising funds for the Support Group as you do it, at no extra cost to yourself. Please help us by using the easyfundraising website. Brief details of how it works can be found here.

To keep up with all the other LATEST NEWS, check out the articles below....

 New Support Forum

 Newsletters

Click HERE to view our new Support Forum

Click HERE to view our past & present newsletters

  Latest News & Events

Below is a list of all the latest News and Events on the RTSUK.org website. To read further about a particlular article please click the headline

 EASYFUNDRAISING.ORG.UK

DO YOU SHOP ON-LINE ? IF SO, YOU CAN HELP US RAISE FUNDS.
If you haven't yet come across ...

 FAMILY WEEKEND 2009

Invitations have now gone out to all current members for our 2009 family event. Briefly, the details...

 CHRISTMAS GET-TOGETHER 2008

We hope you'll be able to join us at our 2008 Christmas event, details of which are shown below.

 RESULTS OF ANNUAL DRAW 2008

The RTS Annual Draw took place on Saturday 19th July, and the results were as follows:
1st prize ...

 2008 AGM AND GET-TOGETHER

This year’s AGM and spring get-together turned into a summer get-together, being delayed to a later ...

 NEW SUPPORT SERVICE FROM CHALLENGING BEHAVIOUR FOUNDATION

The Challenging Behaviour Foundation (CBF) have launched a service which enables families to access ...

 DEDICATED RTS CLINIC OPENS AT GOSH

We’re excited to announce the opening of a dedicated clinic for children and adults with RTS. Overse...

 SNOWDON CLIMB RAISES FUNDS FOR GROUP

Well done to parent Stewart Robertson, who, along with friends and family members, recently complete...

 BEHAVIOURAL RESEARCH UPDATE

The Support Group are liaising with Professor Chris Oliver and his team from the School of Psycholog...

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